Lie to me

“When is Charlie coming home?” It’s a question we hear multiple times a day and always by well meaning people. But honestly, this question adds stress to my life. A better question would be: “How is Charlie doing today?”
Every day we spend at the hospital means another call or text to our home health agency, directly to our favorite nurses, our equipment company, to all 3 of our therapy companies, the various Medicaid contacts, Cameron’s work, our family, and our friends. Most of the time the answer is not what people want to hear. It’s moving too slow with little progress to report. No one feels the weight of disappointment more than I do. So to add the responses of others is sometimes too much.
We live in a strange scenario that I would never have understood before. I would have said and asked the wrong thing every time.
So my advice to communicating with us is to, in essence, lie. Don’t show your disappointment or worry. We have more than our own share. Tell us: it’s a great plan, the doctors are smart and know what they are doing, sometimes progress is hard to see, its a great place to be, and so on and so forth.
And sorry for sounding cranky. We don’t know when he’s coming home.

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1 Comment

  1. Sharon Humphreys Dumas

    I’ve just reread your posts. I’m so thankful you are doing this journaling. It’s unlikely that you’d forget most of the high & low points but each journal is a vivid glimpse of this JOURNEY you are all on. You write so beautifully, even if describing the hardest of emotions. Your honesty is so refreshing because our inner dialogue is that honest, but most people think these thoughts & then feel guilty & that others don’t struggle with feeling angry, bitter, etc. You are experiencing things most of us will never experience…but the thoughts & feelings you have we can identify with. Today’s post was very helpful as we DO want to say things that encourage you & you help us know the difference between encouraging & discouraging dialogue!!!!
    Love you & will keep up the prayers for you all. ๐Ÿ’™๐Ÿ™๐Ÿผ๐Ÿ’™

    Like

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