Lie to me
“When is Charlie coming home?” It’s a question we hear multiple times a day and always by well meaning people. But honestly, this question adds stress to my life. A better question would be: “How is Charlie doing today?”
Every day we spend at the hospital means another call or text to our home health agency, directly to our favorite nurses, our equipment company, to all 3 of our therapy companies, the various Medicaid contacts, Cameron’s work, our family, and our friends. Most of the time the answer is not what people want to hear. It’s moving too slow with little progress to report. No one feels the weight of disappointment more than I do. So to add the responses of others is sometimes too much.
We live in a strange scenario that I would never have understood before. I would have said and asked the wrong thing every time.
So my advice to communicating with us is to, in essence, lie. Don’t show your disappointment or worry. We have more than our own share. Tell us: it’s a great plan, the doctors are smart and know what they are doing, sometimes progress is hard to see, its a great place to be, and so on and so forth.
And sorry for sounding cranky. We don’t know when he’s coming home.